At the age of five, Jessica Fein’s daughter Dalia was diagnosed with a rare degenerative disease that would claim her life at 17. Before that moment came, and inspired by Dalia’s irrepressible spirit, Fein and her family decided to discover how to live in the present when the future can’t be fixed.

Author appears in person.

Jessica Fein, a former op-ed columnist for The Boston Globe, is a seasoned media contributor. She balances motherhood, writing, podcasting, and advocacy with her work as a senior marketing executive and serves on the board of MitoAction, the Mitochondrial disease action committee.